Discussion about this post

User's avatar
Kathy's avatar

Misdiagnosed for 13 years. It was 1986. It’s now chronic and I still get gaslighted. Make the cdc change the bands since they took away many that in fact prove a patient is positive. Drs say oh you only have two bands your negative. Change the criteria. If not patients will suffer more.

Dave Campbell's avatar

A heartfelt thank you to secretary Kennedy. I honestly didn’t think we would see this in our lifetime. My wife has suffered from debilitating chronic Lyme disease her whole adult life. We didn’t even recognize what it was for a few decades. It’s been a long, difficult journey. Ignorant doctors, lack of treatment options, and most importantly the refusal of the healthcare insurance industry to recognize it and cover treatment. Praying all of that changes in the near future.

67 more comments...

No posts

Ready for more?