5 Comments
User's avatar
Cindi's avatar

None too soon! Defestating illness that has been around for years

Kathy's avatar

Misdiagnosed for 13 years. It was 1986. It’s now chronic and I still get gaslighted. Make the cdc change the bands since they took away many that in fact prove a patient is positive. Drs say oh you only have two bands your negative. Change the criteria. If not patients will suffer more.

Kiki Penn's avatar

Thank you RFK Jr. 💚

It’s about time. I was bitten as a child & lost my heath entirely at age 41. Misdiagnosed the whole time.

•I lost EVERYTHING.

My homes, cars, husband, career, my retirement gone. I lost friends and a decent quality of life like other human beings have.

•Trying to survive on SSD alone is impossible. The COLA isn’t keeping up with Inflation. Lyme is a REAL financial disaster. After loosing every penny to out of pocket costs, I now struggle to pay bills. Food or meds?

I have a check from Fidelity for $.01 when they closed out my 401k. I also had to file bankruptcy.

•I was told over & over again, it’s all in my head and have been under Psychiatric care since age 15. I never imagined my life would turn out this way.

•I began to advocate with Center for Lyme Action in 2019 when the organization began. I’m very grateful for the support and funding we have gotten, but this needs to be blown wide open. We need all hand on deck. Politicians, Associations, Doctor education, surveillance and more.

I’d still like to know if this was a bioweapon created by the DOD over 50 years ago. Where are the reparations?

Again, THANK YOU for bringing Lyme to the forefront. It’s long overdue.

Dave Campbell's avatar

A heartfelt thank you to secretary Kennedy. I honestly didn’t think we would see this in our lifetime. My wife has suffered from debilitating chronic Lyme disease her whole adult life. We didn’t even recognize what it was for a few decades. It’s been a long, difficult journey. Ignorant doctors, lack of treatment options, and most importantly the refusal of the healthcare insurance industry to recognize it and cover treatment. Praying all of that changes in the near future.

LW's avatar
22mEdited

Ha ha ha — nothing more than more shenanigans :

“The centerpiece of the new efforts to combat the illness is a multi-million-dollar pilot program led by the CDC and leading researchers to ELIMINATE TICKS on wildlife before they can transmit diseases to humans.”

Sounds like dreaming up more poison to apply. Or maybe Gate$ has some other taxpayer funded scheme up his sleeve for a GMO mosquito dispatch to “ eliminate TICKS”.

Oh yeah, how about a new poison mRNA vaccine for that? And HHS can issue a special PREP Act exception for any harm it causes.